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Team Mateo Running for LGS Cure
#LetscureLGS
My son Mateo has Lennox Gastaut Syndrome (LGS). LGS is a severe epilepsy syndrome that develops in young children and often leads to lifelong disability. LGS is a rare disease (approximately one person in every 2,000). About 50,000 people in the United States and 1 million people worldwide have LGS. The LGS Foundation has created a database to learn from every child and is funding research to find the causes of LGS rather than just treat the symptoms. Every thing that Mateo does requires extra work, whether it is staying awake, seeing, holding up his head or walking in his gait trainer. Mateo has always been noticed for his perseverance and determination to love , learn, communicate, ride his adaptive trike and for his smile and sense of humor. Mateo takes six different anti-seizure drugs. It is an ongoing battle to stop seizures and have Mateo be awake and alert. Help us raise funds to find a cure for LGS! #letscureit
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Rachel EVANS donated $21.57. -
Mabel/Judy St. James donated $26.89. -
Christine Foot donated $50. -
Annapurna Poduri donated $50. -
Rosario Drayton donated $53.45. -
Judy Scribner-Moore donated $50. -
Robert Bacon donated $300. -
Anonymous Donor donated $100. -
Julie Kenerson donated $106.59. -
Heather Ruemenapp donated $53.45. -
David Harris donated $26.89. -
Kerri-Ann Donovan donated $106.59. -
Susan Harris donated $180. -
Anne Dwyer Wilmer donated $25. -
Anonymous Donor donated $100.
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Gary Coccoluto donated $26.89. -
Bob Estes donated $50. -
Richard Wherry donated $106.59. -
Kathy Burnes donated $53.45. -
Lisa Garcia donated $100. -
Joanne Liautaud donated $265.99. -
joan Klagsbrun donated $106.59. -
Nancy McArdle donated $21.57. -
Peter Chung donated $25. -
Deborah Parker donated $53.45. -
Erika DeRoche donated $53.45. -
Madelyn Wenham donated $26.89. -
Tracey Cartwright donated $50. -
Betsy Blume donated $100. -
Cole Godzinski donated $100. -
Jennifer Buxton donated $26.89. -
Mindy Benson donated $50. -
Amy Vinson donated $53.45. -
Angela Thomas donated $500. -
Terry Desautels donated $53.45. -
Ann Motl Taylor donated $25. -
Mary Caulfield donated $53.45. -
Anonymous Donor donated $53.45.
-
Alexandra Kennedy donated $100. -
Keri-Nicole Dillman donated $53.45. -
Sarah Muzzy Lim donated $200. -
Bob & Anne Massie donated $100. -
JOEL M IVES donated $250. -
Sarah Marie Jette donated $50. -
Laura McGloine donated $80.02.
-
Rachel EVANS
Donated $21.57 -
Mabel/Judy St. James
Donated $26.89 -
Christine Foot
Donated $50 -
Annapurna Poduri
Donated $50 -
Rosario Drayton
Donated $53.45 -
Judy Scribner-Moore
Donated $50 -
Robert Bacon
Donated $300 -
Anonymous Donor
Donated $100 -
Julie Kenerson
Donated $106.59 -
Heather Ruemenapp
Donated $53.45 -
David Harris
Donated $26.89 -
Kerri-Ann Donovan
Donated $106.59 -
Susan Harris
Donated $180 -
Anne Dwyer Wilmer
Donated $25 -
Anonymous Donor
Donated $100 -
Gary Coccoluto
Donated $26.89 -
Bob Estes
Donated $50 -
Richard Wherry
Donated $106.59 -
Kathy Burnes
Donated $53.45 -
Lisa Garcia
Donated $100 -
Joanne Liautaud
Donated $265.99 -
joan Klagsbrun
Donated $106.59 -
Nancy McArdle
Donated $21.57 -
Peter Chung
Donated $25 -
Deborah Parker
Donated $53.45 -
Erika DeRoche
Donated $53.45 -
Madelyn Wenham
Donated $26.89 -
Tracey Cartwright
Donated $50 -
Betsy Blume
Donated $100 -
Cole Godzinski
Donated $100 -
Jennifer Buxton
Donated $26.89 -
Mindy Benson
Donated $50 -
Amy Vinson
Donated $53.45 -
Angela Thomas
Donated $500 -
Terry Desautels
Donated $53.45 -
Ann Motl Taylor
Donated $25 -
Mary Caulfield
Donated $53.45 -
Anonymous Donor
Donated $53.45 -
Alexandra Kennedy
Donated $100 -
Keri-Nicole Dillman
Donated $53.45 -
Sarah Muzzy Lim
Donated $200 -
Bob & Anne Massie
Donated $100 -
JOEL M IVES
Donated $250 -
Sarah Marie Jette
Donated $50 -
Laura McGloine
Donated $80.02